Monday, 26 October 2015

Family Stop Disabled Daughter From Growing To Help Expand Her World.

A 10year old girl, Charley Hooper, is so disabled that her mother considers her "unabled."

Her brain is believed to function at the level of a newborn's. She cannot speak, cannot walk, cannot see anything beyond light and dark and perhaps the shadowy shape of a face held inches away.

Her parents, Jenn and Mark Hooper, fearing a bleak future for her came up with a radical solution- they decided to stop her growth and remove her womb.

Charley is now around 1.3 meters tall (4 foot 3) and 24 kilograms (53 pounds), and will remain so for the rest of her life.

Many people see the very idea of stunting and sterilizing the disabled as a violation of human rights, although some are in support of it.

Charlie's mother said that a doctor once told her that he would never do such a thing to his child. And she replied, "aren't you lucky, that you never had to make that choice?"

According to Charley's parents, Charley came into the world floppy and not breathing. Midwives bungled their attempts to resuscitate her, and by the time specialists arrived, she had been deprived of adequate oxygen for nearly an hour. Her brain was left irreversibly damaged.

After five months, doctors found she had Infantile spasms, a severe form of epilepsy with nil chances of her ever walking or talking. And she was blind.

Charley suffered constant seizures, and vomited everything up. Cerebral palsy weakened her throat muscles, making every swallow potentially lethal.

Jenn found an answer to their dilemma- Growth attenuation, in a newspaper article about a severely disabled Seattle girl called Ashley who had the same treatment. Ashley's uterus and breast buds were also removed to eliminate the risk of pregnancy and pains of menstruation.

In 2013, the United Nations dubbed the sterilization of the disabled without their consent "an increasingly global problem," and last year the World Health Organization demanded an end to it.

Gary Butler, chairman of the European Society for Pediatric Endocrinology's clinical practice committee, feels there is no need to stunt the growth of severely disabled children because they often enter puberty early, which naturally leaves them smaller.

"People are really entitled to grow and to become the people they were meant to be," says Margaret Nygren, CEO of the American Association on Intellectual and Developmental Disabilities. "Would you ever want this kind of treatment done to you without your consent or knowledge? And if the answer is no, then why would one want to do that to someone else?"

This is a really controversial subject and I'd like to know your thoughts (on growth attenuation).

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