Sunday, 25 October 2015

Boy born with heart beating outside his chest

Extraordinary footage has emerged of a man born with his heart outside his rib cage, beating under just a thin layer of skin.

The video is of Arpit Gohil, whose parents were told he would almost certainly die when he was born with the extremely rare condition.

Now 18, the boy in the video is being hailed by doctors as a 'medical miracle', who say a slight fall or bump could kill him instantly.

Known as Pentalogy of Cantrell, the rare condition affects foetal development and causes babies to be born with vital organs (such as the heart or intestines) on the outside of their bodies.

Most children with the condition would be treated with kid gloves, wrapped in cotton wool and refrain from unnecessary risks.

But Arpit, who was born with the most serious form of the disorder known as 'ectopia cordis' of which there are just 165 known cases, is no ordinary man.

However because part of his diaphragm doesn't work, the rest of the muscles are working overtime.

This means that any other infection he might pick up, such as pneumonia, would be much worse for him than for a normal patient.

Dr Sanjeeth Peter, director of the Nadiad-based DDMM Heart Institute, warned that Arpit could die at any second.

When Arpit was born, doctors thought he had been born with two hearts, but a sonograph revealed he had one heart outside his rib cage. They told his parents Arpit had almost no change of survival.

Now Arpit is considering having an operation to move his heart into its correct position after reading of a similar case of a girl in China.

On examining Arpit, Dr Peter discovered five defects including an abdominal disorder above his belly button and a defect inside his heart.
‘He is OK for the time being,’ said Dr Peter. ‘But he could develop respiratory problems or circulatory problems at any time, because the problem is putting so much strain on his body.
‘I believe the best thing for him to do would be to go ahead with the operation. After that he would be able to lead a normal life.’

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